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About Me

I have put this book together with the help of my friends and family but I hope that as time passes everyone who knows me will have something to add to it. If you have anything you would like to add, or if there is anything else you think would be useful to have included, could you please phone my Mum or Dad.

Stephen

  by Stephen Reid

About Me

This book has been written to help you get to know me. I was born in the Southern General Hospital on Friday 19th February 1993. I have two older brothers, Michael & Gavin, who are twins and a year older than me. I have two Grandmas, two Aunties and one Uncle.  Gran Taylor, Grandma Reid, Auntie Gilly and  Auntie Linda all live near us in Glasgow.  Uncle Jonathan lives in Boston in America.  Michael, Gavin and I are the only children in the family and that means we are spoiled rotten  tee! hee! hee! When we are at school we live at 2 BXXXX Drive with our cat Reggie.  Reggie is orange and white and has three legs - he did not look both ways before he crossed the road. 

We have a tree house and large trampoline in our garden and we usually have lots of friends round to play.  When we are on holiday from school we live in our holiday house in Millport on the Isle of Cumbrae.  You can see the beach and the sea from our front window and even when it is not sunny the water is really cool to look at and play in.

I tend to use a PECS* book to talk to you because I find it easier than using verbal language.  This does not mean that I cannot speak, I just decide for myself when I want to. I understand gesture, body language and tone of voice very well.  I also understand verbal instructions if they are given clearly and concisely by someone who has ensured they have my attention.

Glossary of terms

PECS  ‘Picture Exchange Communication System’

I have a book with lots of pictures of things I like to do and things I might want to ask for. When I want something I have to select the ‘I want’ symbol and a picture of what I want, stick both on a sentence strip. I then hand the sentence strip to the person I want to help me.If I want help to get the thing or do the thing I also attach the help card. Some people also use the PECS book to talk to me if I don’t understand what they want me to do or if they want me to make a choice about something.

Green Foods

These are the foods that Mum and Dad have discovered I am not reacting to just now. this does not mean that they are always OK for me to eat. I become intolerant to things I eat a lot and also I can only tolerate some of the foods in moderation.

Red Foods

These are things that give me tummy ache; make me silly; turn me in to a ‘whirling dervish’ or make me sick and itchy. 

Spelt

A grain often used as an ingredient in processed foods.

                                     

My PECS Book

My Photo Album

Words people use to

describe me

happy, cuddly, funny, bendy, bossy, gorgeous, loveable, energetic, bouncy, loving cute, mischievous















    FUN!

Things I am good at

Trampolining
Climbing
Balancing on high objects
Counting in sequence
Giving cuddles
Making people laugh
Making people do things for me
Giving kisses
Playing computer games
Working the video recorder
Cataloguing things
Throwing and catching a ball
Finding water to play in
Filling and emptying things
Sussing people out                              
Reading body language
Spouting water from my mouth like a whale













Green Foods

          Walker’s Ready Salted Crisps        Bottled Water

          Special Bread made by Mum        Bananas (occasionally)

          Soya Yoghurt (occasionally)         Carob Bars                                         

          Strawberries (occasionally)          Homemade biscuits                   

Speciality biscuits                       Pears

          Apple juice (occasionally)            Speciality crackers

Pineapple juice (occasionally)       Peaches

Unflavoured popcorn                  Pineapple pieces              

Starburst Joosters                       Mango                                      

Chicken                                     Rice

Plain potatoes                            Ibuprofen

Popadoms                                 Melon

Red Foods*

          Anything containing gluten (wheat, rye oats, spelt*)

          Anything containing milk or lactose

(milk, yoghurt, cheese, butter, milk chocolate, most

margarine, many processed foods)

          Tuna                                         Chocolate

          Fizzy Pop                                   Most confectionary

          Anything ‘diet’                            Gravy

          Most processed food                   Pasta

          Fish fingers                                Chicken nuggets

          Chips                                        Pizza

          Coleslaw                                    Mayonnaise

          Happy Faces                              Baked beans

          Soup                                         Jelly

Ice cream                                  Some glues

Playdoh                                   Blue tack

Plasticine                                Paracetamol

Things I like

Bouncing on a trampoline            Watching videos

Playing games on the computer   Satin fabrics

Playing with water                      Reading books

Feeling the wind in my face         Getting tickled

Rough & Tumble games              Making music

Going fast in the car                    Walking

Throwing stones into the water    Dancing

Going to the swimming pool        Soft play areas

Going to the pictures                  Playing on swings            

Sliding down chutes                    Eating & drinking

Doing anything I’m not               Boys Brigade

meant to

Getting a head massage              Bubble makers       

Playing on the Playstation            Lego

Fairground rides                         Fast roller coasters

Roundabouts                             Ferries

Standing at the top of the climbing frame

Things people say about me

‘Those eyelashes are wasted on a boy!’

‘How does he manage to bounce like that on the trampoline?’

‘He makes me laugh’

‘If I tried to stand up there I would fall off!’

‘He’s always so happy’

‘He’s so neat and tidy – he can stay with me any time’

‘He’s so flexible – I bet he would be great at Yoga’

‘He makes me smile every time I see him’

‘He brings out the best in me’

‘He challenges my preconceptions’

‘He makes me think’

‘He makes me see things differently’

‘He’s such a nice boy’

‘He’s a little minx’

‘He’s a typical wee boy’

‘He’s a silent comedian’

It would really help me if

you could…….

Remind me to go to the toilet at regular intervals through the day.

If I am very involved in what I am doing I will leave it until the last possible minute.

Remind me to wash and dry my hands after I go to the toilet.

Although I know to do this I don’t really see why it is so important.

Supervise me when I am in the toilet area.

I am full of mischief and love playing with water. I especially like watching water cascading out of an overflowing sink and will indulge this pleasure when given the opportunity to do so.

Remind me of the purpose of sitting in the dining room at lunchtime.

Although I love food, I also love watching the world go by and often become so absorbed in watching everyone else I forget that I am there to have lunch.

Supervise me closely when I am getting changed for PE.

I am able to change myself but have problems coordinating small buttons and hooks. I am however quite lazy and would much rather have someone else to wait on me hand and foot.

It would really help me if you could…….

Make sure I only eat and drink what my Mum and Dad supply (or what is on my green food list).

Foods containing Gluten or Casein turn me into a ‘whirling dervish’.

Help me identify the dangers within my environment. Sometimes my inquisitive nature gets the better of me and I will disregard even obvious dangers in my quest for knowledge.

If I see an interesting car on the other side of the road, I will go to investigate without checking to see if it is safe to cross.

Let me know what my plan for the day is and give me advance notice that things are about to change.    

My visual timetable lets me know what I am going to be doing throughout the day.  If I am prompted to remove the activity card a couple of minutes before we are moving to a new activity I can get a handle on it.

Give me time to observe new activities from a safe distance for a whileand then let me join in when I am ready.

My main way of learning is watching others and then copying their role modelling.  Once I have sussed out the situation and am sure I know what is expected of me I will become an eager participant.

Make sure my PECS book is always available to me and remind me to take it with me.

If I cannot explain what is wrong I become very frightened and frustrated.  I feel like I have no control.

Things I do for others

Family:        

He makes me a better person and a better parent   

(Jaqui, Mum)

He helps me to appreciate all of my children’s gifts  

(Martin, Dad)

He teaches us to do tricks on the trampoline  

                                               (Michael & Gavin, brothers)

He keeps me young                          (Grandma Reid)

He makes me feel so loved                   (Gran Taylor)

Adults:

He has shown me a different side of all of the boys as he seems to naturally bring out the best in all of them. (Elaine, BB leader)

He has challenged me to adapt and learn as a teacher and has taught me to be a better teacher. (Nan, teacher)

Other Children:

He taught me to bounce on to my bottom and back up

on the trampoline                             (Greg S, friend)

He’s fun to play with                         (Greg M, friend)

He’s always full of energy and that makes him fun to

play with                                        (Andrew, friend)

He lets me help him and that makes me feel good        

                                                                        (Neil, BB)

These are a few of my favourite things…………

Thomas the Tank Engine
Postman Pat
Winnie the Pooh Sing-a-long songs at full volume
Disney Videos – Satin fabric (comforter)
Eine Klein Nacht Musik
The Nutcracker Suite
S Club 7
Crash Bandicoot
Organic Cornflakes                              
Gluten free toast
Carob
Bottled water
Walker’s Ready salted Crisps
Gluten free biscuits
Remote control panels
The video controls

If I become distressed it would really help me if you could……

Make sure only one person approaches me.

Lots of people confuse me and make me more distressed.

Remain calm and speak clearly.

My emotions will mirror yours.

Stay with me to support me.

Your presence will make me feel safe.

Reassure me that things are OK and that I am safe.

I will be scared.

Help me get to somewhere peaceful as soon as I am able.

A quiet area helps me to regain my composure.

Stroke my arm or my head.

Physical contact has a calming effect on me.

Make soothing noises (e.g. shhhhh).

Soothing noises have a calming effect on me.

Find something I like for me to do once I am feeling better.

This allows me to refocus my energies positively.

Things that upset me

Loud, unexpected noises          Sudden changes

Things that are squint                 Disorder

Foods I am intolerant to              The unknown

Electrical equipment that doesn’t work

Water & things to                       Other children to

play with                                   bounce with 

But most of all …………

     My trampoline